documenting life with two useless pancreases
There are a great many things that I talk to my friends and family about. Happy things, sad things, memories, plans. The fact that we spent a whole hour recently trying to figure out what our 4 year old meant when he said he really liked "moon sex" (sorry, what?), until we finally realized that [...]
Just shy of two years in, and some days I still don't quite know how to explain this whole thing to you. You woke up to me changing out your infusion set in the dead of the night the other day, bleary eyed and confused. When I tried to shush you back to sleep, your [...]
At the hospital, they teach you how to give shots and juggle numbers and make life or death decisions, but the reality is that only time will tell how your little T1 will learn to navigate this strange world where not everyone has a verifiably hopeless pancreas like they do. He knew he had T1D - that he was different, and brave. But how could we possibly explain to our (by then) 3 year old the magnitude of what that meant for him? Over the years, the conversations have become easier. We've taken our lead from him - what he's ready to know, and what he's not. What words to use. This is the best of what we've learnt.
This particular day was my husband's first long day back at work after a brief but much-appreciated stint of paternity leave, and my first time solo-tackling the baby and the newly-diagnosed two year old. Life was pretty up in the air and to be honest, in the early days of life post-diagnosis, my way of [...]
The DiaBeat 