documenting life with two useless pancreases
I think it probably goes without saying at this point that it's been a bit of a year. January and February were hunky dory, but March was not our friend and honestly, neither were April, May, or any of the months that followed. Now it's nearly November and this week our 4 year old made [...]
There are a great many things that I talk to my friends and family about. Happy things, sad things, memories, plans. The fact that we spent a whole hour recently trying to figure out what our 4 year old meant when he said he really liked "moon sex" (sorry, what?), until we finally realized that [...]
This week has been a busy one for us. Our big kid celebrated his two year "Diaversary", and, because it never rains but it pours (and this has never been truer for us than in August of 2018), our little guy turned two this week too. Our house has been filled with balloons and giggles, [...]
One day back in the fall, as we headed down the street on one of our evening walks, I watched you running ahead of me, dinosaur tail waggling on the costume you insisted you wore. I watched as you ran in a wobbly path past the "Hate Has No Home Here" signs and the piles [...]
Navigating T1D with a toddler is, I suspect, much like navigating T1D with several sticks of aged dynamite. You never know when they're going to explode or what's going to set them off, and they are fiercely unreasonable in basically every way. Our boy wasn't what we might call the most reasonable of babies, but [...]
Just shy of two years in, and some days I still don't quite know how to explain this whole thing to you. You woke up to me changing out your infusion set in the dead of the night the other day, bleary eyed and confused. When I tried to shush you back to sleep, your [...]
At the hospital, they teach you how to give shots and juggle numbers and make life or death decisions, but the reality is that only time will tell how your little T1 will learn to navigate this strange world where not everyone has a verifiably hopeless pancreas like they do. He knew he had T1D - that he was different, and brave. But how could we possibly explain to our (by then) 3 year old the magnitude of what that meant for him? Over the years, the conversations have become easier. We've taken our lead from him - what he's ready to know, and what he's not. What words to use. This is the best of what we've learnt.
This particular day was my husband's first long day back at work after a brief but much-appreciated stint of paternity leave, and my first time solo-tackling the baby and the newly-diagnosed two year old. Life was pretty up in the air and to be honest, in the early days of life post-diagnosis, my way of [...]
This week has been a bit of a doozy, and it's left me thinking a lot about self-care. T1D is so relentless - so unforgiving - that sometimes it, coupled with an ordinary sort of difficult week, can be enough to really wear you down. There are no sick days. No vacations. No breaks from [...]
I have been meaning to write about this one for a while, mostly because when I was trying to research the switch, I read a bunch of testimonies from other people who'd been willing to share about their reasoning, and it really helped us. I want to preface this post by saying that in pretty [...]
The DiaBeat 